"Whether we are filled with joy or grief, our angels are close to us, speaking to our hearts of God's love."

Monday, May 31, 2010

May 31, 2010

No sooner did I post the last update, Benjamin went back on cpap because he was showing signs that he was working just a little bit too hard to breathe. I figured it was pointless to post again because I was confident he would be back on the nasal cannula within a few days and he was. He’s been such a superstar. We’re so proud of him and the progress he’s made.

He’s up to 5.5 ml/hr. of breast milk which equates to about 4.4 ounces a day. He’s getting continuously fed from a tube in his nose and he’s been tolerating it well. However, his poor little nostrils are swollen and bloody from the prongs as well as the feeding tube and he’s been acting very agitated over the past few days. The nurse assigned to him today was able to get a nice size plug out and he was a happy camper after that! I had a wonderful afternoon just staring at him so content in my arms.

We signed Benjamin up for Reike and he’ll have his first session tomorrow. We think this is just the coolest thing! For those of you who aren’t familiar with it, it’s a form of energy healing where a certified Reike master will lay her hands on different parts of Benjamin’s body and channel her energy to him to provide stress reduction and relaxation. I can’t wait to see how he does with it. If only they offered it for the parents!

We will meet yet another new neonatologist at some point this week. S/he will only be on for the next two weeks. We found that as soon as we get comfortable with one, s/he is done with his/her rotation and we have to get used to another one. At least he will always be followed by the same surgical team even after he comes home and has his outpatient visits. We love his chief surgeon. We rarely get to see her, but the last time we did she was telling us that her mom out in California was asking her how Benjamin was doing. We thought that was unbelievably sweet and it continues to amaze us that there are so many wonderful people out there that are praying for our son each and every day.


  1. Wow... he's doing so well up to 4 oz. a day!! That's awesome sweetie! And he hasn't even reached his due date yet! I'm sooo happy to hear that you're getting to hold him more, and the Reike sounds amazing. Have you gotten to kangaroo care him again lately? I miss you... once school is out I'll be calling you to schedule some mommy-and-kids play dates. Love you!

  2. One of the moms from my high school volleyball team did Reiki-it was pretty amazing! I think it will be very relaxing for Bejamin! And hooray for the milk! Such great news!!

  3. Hi guys this is Peter Doherty from Atkinson Country Club. Jim gave me the address to follow Benjamin's progress. Please know you are in my thoughts and prayers through this difficult time in your lives. You have the best care in the world there as my own son spent a month in the NICU and those nurses are unbelievable. I will continue to follow his progress and keep you in my prayers.
    Take care

  4. So happy to hear that Benjamin is doing so well. We have him on the prayer chain at our church, so there are a lot of people praying for him. Your entire family is in our daily thoughts and prayers.
    The Frasers