"Whether we are filled with joy or grief, our angels are close to us, speaking to our hearts of God's love."

Saturday, January 1, 2011

January 1, 2011

A few days after my last post, we got the call that Benjamin's glasses had come in. I thought it was ironic that a friend of mine emailed me that very morning to tell me that it was Saint Lucia's day (she's the patron Saint of the blind) and that she said a prayer for Benjamin's eyes. His glasses weren't due in for another 4 or 5 weeks. I was thinking it was an omen and that we needed to get those glasses asap! On our way to pick them up I was filled with a bunch of different emotions... sadness because my baby had to wear glasses, excitement because maybe he could finally see, and nervousess because what if he couldn't. It took awhile for him to adjust to them and after about a week, we started seeing slight improvements. His eyes aren't crossing as much and certain things catch his attention (mostly shiny objects), But, he absolutely hates them. The wire frames leave marks on his little face and are always sliding down his nose. We've decided to get him another pair that are so flexible you can actually bend them. They'll be in next week, and I'm keeping my fingers crossed he doesn't scream when he has to wear them like he does now.

We've got a busy month of doctors' appointments. Monday we'll be going into Children's for an ultrasound on Benjamin's kidneys. Hopefully his kidney stones are gone. If not, I'm not sure what the course of action will be. Later this month we'll be meeting with opthamology, neurology and complex care.

Benjamin had his first therapy session in the pool a few weeks ago and did really well. His legs were very easy to move in the water and the therapist was able to give his muscles a good stretch. He did a lot better in the water than he does "on land." He has major problems when he is transitioned from one position to another. For example, if I calm him down in my arms and then gently put him on his back on the floor he is usually okay. However, as soon as I try to turn him onto his side, he flips out and will scream until he turns blue. It's also extremely hard to break his extention when he tenses up. When he's upset he'll throw his head back, arch his back and kick his legs out. We have to fight him and try and curl his body inward. Once we can break that extension, it's not as hard to calm him down.

Anyway, good riddance 2010! We were only three weeks into the year when I got the devastating news that I had twin to twin transfusion syndrome and it was downhill from there. Although I'm unbelievably grateful that this past year brought us Benjamin, I've never been more excited to see a year end. I'm hoping 2011 brings my family and friends good health and happiness. I can't wait to spend the summer with the kids down the Cape, like we should have been doing last year, and I'm looking forward to watching Benjamin reach his milestones and surpass everyone's expectations.

1 comment:

  1. Keep up the positive spirit and 2011 will bring you many good things. Glad to hear things continue to improve.

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