Benjamin's still having some pretty severe spells. One of which happened only a few hours ago. Thankfully he hasn't had to be intubated, but we're walking a fine line. He's been almost comatose the past few days and he actually cried for about 15 seconds today which we were told is a good thing. We can tell he must be feeling a little better because he'll occasionally wake briefly and try to arch. We were actually hoping this whole experience could deter him from arching if he thinks it might bring him more pain.
They decided to hold off on the arterial line today, we're not exactly sure why, but there's a small, teeny tiny possibility that he may not need one because he pooped! This means he has motility in his bowel. We've never been more excited about poop in our lives!! We weren't there when he did it, but when we got the call from his nurse we were so close to asking her to save the diaper for us so we could see it ourselves. I know, it sounds totally gross, but this is such a huge deal.
YAY for poop!! Scary that he's still having spells, though... one moment at a time sweetie. Still praying.
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