As you know, the NICU at MGH had to close it's doors for awhile. The plan was for Benjamin to have the surgery at Mass Eye and Ear and then be transported back to Children's. Although he does love his bumpy ambulance rides, it wasn't the ideal situation right after surgery so we were relieved when the NICU reopened on Monday and he was admitted on Tuesday. I am actually writing this post from Benjamin's private room. For those who luckily haven't had to visit, it's quite an impressive hospital and he has the most beautiful view of the Charles River. It's been kind of a treat for us to stay here! We actually saw one of the nurses from Boston Med down in the cafeteria this afternoon. We thought that was kind of cool! Speaking of Boston Med, what an awesome show that was! If you haven't seen it, I highly recommend you watch it. Some of the episodes were a bit tough to watch because they really hit close to home and brought back horrible memories of waiting on pins and needles every time Benjamin was in the OR.
We were up bright and early this morning to prep for surgery and Benjamin did wonderfully. His left eye was the one that was operated on; however, upon examination this morning, his surgeon said the right eye was worse than he originally thought. As of right now, he think Benjamin may need additional laser treatment in both eyes, but no more surgeries like the one he had this morning. The laser surgery is something they can probably do at his bedside again once he returns to Children's.
Anyway, we're one surgery down, one more to go. We were told today that once he returns to Children's (which will most likely be tomorrow), he'll have a few studies done so his surgical team has a better idea of what they'll find when they open him up. I've been nervous over this surgery for awhile and I'm starting to get extremely anxious. We'll need lots of prayers next week. Although we're getting closer to coming home, this is going to be a long and difficult surgery and Benjamin is going to take some major steps back.
Praying for Benjamin and you and keeping you in my thoughts. I'm so glad that the first surgery went well but know how anxious you must be for the next. Sending you well wishes. Continue to keep us all posted. This little guy has angels watching over him.
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