"Whether we are filled with joy or grief, our angels are close to us, speaking to our hearts of God's love."

Friday, August 31, 2012

August 31, 2012

We've had an extremely tough and trying week. The surgery last Friday didn't go as smoothly as we had anticipated. What was supposed to be an hour and a half in the OR, turned into a lot longer. I left Ben as he went to sleep and it was 5 hours before we got to see him again. My stomach was in knots. As far as what needed to be done, the surgery was a success. However, Ben ended up on a ventilator for 24 hours because he came out of anesthesia an absolute mess. We were in the ICU for 2 nights and spent the majority of the time trying to calm him down while they were pumping him with versed, morphine and some other heavy duty pain medication.

Before the surgery Ben was hypersensitive, irritable and not sleeping well at night and it's only gotten worse. We're up about every two hours trying to calm him down. He's not tolerating his feeds, and the reflux is out of control (during the day and at night). We're at a loss. I've been talking to GI, the pediatrician, and the neurologist to try and figure out what we should do.

As we wait for some answers, all we can do is try to remain positive. I keep telling my little buddy that "we're gonna figure this out!"

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