My baby is 5 today. It’s amazing how quickly half a decade
can go by like the blink of an eye. The progress Ben’s made in the past year
has been slow, but it’s there. What may seem so insignificant to some people,
can be huge to us. He’s holding his head up for longer periods of time, taking
steps if someone is holding him under the armpits, understanding more and more
words, and eating by mouth! He’s not a big fan of meat so I call him my little
vegetarian. Some of his favorite foods are soy nut butter (he’s still allergic
to peanuts) blended with banana, avocado, sweet potato, carrot souffle, pasta, yogurt,
and pudding. We basically blend up whatever we can and let him try it. For the
most part, he’s been pretty receptive. He’ll never eat enough for us to get rid
of the tube, but I’m ok with that. I once hated that tube, but now I don’t
think I’ll ever want to get rid of it. It’s become like a security blanket for
us.
Our biggest medical
issues have been controlling Ben’s seizures, and dealing with the tightness in
his hamstrings and ankles. He’s had Botox treatments a few times now (twice in
the hamstrings and he’ll be getting his second round in his ankles this month).
Has it helped? Maybe. We can see more range of motion in his ankles, but I’m
not sure it’s helped his hamstrings as much. I don’t like these treatments at
all, but if we can postpone surgery we’re willing to keep doing it.
This winter has been ridiculously long, but one thing I’m
grateful for are the potholes and frost heaves we have all over the place. You’re
probably thinking has this girl finally gone mad??? What is she thinking!!! Well,
Ben LOVES driving over what we refer to as the “bumps”... especially the big
ones! I’m sure the van will be in the shop soon, but I’ll do anything to see
Ben laugh to the point of shaking.
One of the major highlights of this past year was our Make a
Wish trip to Disney. It was absolutely amazing. Definitely the trip of a
lifetime. I wish we could do it all over again! Seeing the joy on both of our
kids faces was priceless.
I could go on and on, but it’s time for me to cut myself a
big chunk of cake. Good night all!